News & Media
Coverage of Leo’s story, the foundation, and the wider effort to make personalized medicine reach the children who need it most.
2026
2025
Suffolk Reporter
Yiwei She honored as 2025 Woman of Distinction
New York State Senator Anthony Palumbo names Yiwei She the First Senate District’s Woman of Distinction, for the research she drove after Leo’s diagnosis and for founding the TNPO2 Foundation.
Rare Awareness RadioPodcast
Yiwei She: TNPO2 Foundation
An interview tracing the route from mathematician and machine-learning scientist to rare-disease advocate, and what Project Baby Lion is trying to change about early genetic diagnosis.
2024
The Long Island Advocate
Setauket mom is fighting for children with ultra-rare diseases
On the campaign to widen access to personalised medicine after a bespoke treatment was developed for Leo inside a year, and on the Stony Brook Children’s partnership behind Project Baby Lion.
Long Island Press
Super-mom Yiwei Fighting For Kids With Rare Diseases
A profile of what followed being told there was nothing to be done for Leo — an AI-assisted therapy secured within a year, and a push to get rare disease onto the political agenda.
Global Genes · RARE DailyPodcast
Enabling On-Demand Therapies
Creyon Bio’s chief executive on designing medicines to order, with leosen and Leo’s case as the worked example throughout.
Global Genes · RARE DailyPodcast
After Driving an N-of-1 Therapy for Her Son, an Advocate Turns to Helping Others
A long interview on self-funding leosen, founding the foundation in 2022, and building Project Baby Lion with Rady Children’s Institute and Stony Brook Children’s.
Once Upon A GenePodcast
A Mother’s Mission — Project Baby Lion, ASO Therapy and the TNPO2 Foundation
From Leo’s first seizures at two months to an antisense therapy, and the case for publishing the protocols and data so the next family starts further along.
Plugged Into Long IslandPodcast
TNPO2 Foundation
A local interview on Leo’s diagnosis and how the Project Baby Lion pilot is set up to reach families in the same position.
InnovateLI
In little Leo, the face of future personalized medicine
How a California biotech used artificial intelligence and other emerging tools in a rescue attempt for a two-year-old Setauket boy born with an ultra-rare genetic disease.
Patch
Long Island Boy, 2, Gets ‘Life-Changing Dose Of His Own Medicine’
Covers the diagnosis at four months, the partnership with Creyon Bio, and the first doses of leosen — the medicine made for Leo alone.
Greater Long Island
Setauket baby battling to survive an ultra-rare disease
The family’s story from diagnosis to leosen’s first dose and Leo’s measurable gains at two, candid that the long-term outlook is still uncertain.
